Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
16 Years with Morgellon
For years everyone treated me like I was crazy. Well I guess they had good reason since in 1996 I went to
Mayo and they said I was crazy and multilating myself. It really hurt since my own husband and mother believed Mayo and not me. It wasn't until 2006 (ten years later to the month) that I found a doctor (a D.O.)
that believed and tested me. I was so bad I went to a hospital in Germany for three weeks for hyperthermia
treatments. I had to go - all my internal organs were starting to fail. I felt much better after I got back but after decades with lyme disease it did not go away nor the morgellons. The doctor says my cells are still leaking.
I take many supplements and excerise and do feel better now than I have in over twenty years. I know my time is limited now at 57 years old. Even though I still pull morgellon out - I'm trying to enjoy each day and help animals which is my love. You see they never judge you and always love you - lyme disease and morgellon and all.
Comment
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Comment by gordon m. on February 19, 2010 at 1:34pm -
About the animals...i live in baja, where the life of a human has no value, let alone the life of an animal...I rescued a dog 12 years ago, still have her, then I saved another one from being run over, 6 years ago, I still have her and she had puppies 4 years ago, and I kept 2, then on Valentines day I saved a 1 month puppy from the highway, and I still have her since finding homes for them here is practically impossible, they ALL love me so much, they think I am ALPHA and OMEGA...3 of them have border collie genes and those 3 got a terrible attack of M on them, I can tell their nervous system is compromised, for they are extremely super sensitive to even flies and noise in general...I put MMS in their water and their sores went away...and they KNEW!!! and they are grateful for the improvement...they are such good teachers...always in the moment...eager to please...I worry at night, wake up in cold sweats from nightmares about what is going to happen to my 4 legged family...and my girlfriend...if I do not find a solution...If WE don' t find a way out...
I was wondering how to get meds down here to mexico...it seems the FDA is banning all the stuff that is good for us and allowing poisons to be sold to the public, it is worldwide, we need to organize and pool our strengths to bring down the doctors cabal/ den of thieves, though there are some good ones, the the former have the power structure and status quo...TIME FOR A SHIFT...i pray
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Comment by Andrea Figueroa on February 15, 2010 at 10:59am - I just wanted to say that I believe you and I also have the same reactions from my mother and my husband! When I had Skin Cancer I could talk to anyone about it and no one ever said to me that I am "delusional" or that I must want to have Morgellons since I try to talk about it!? I am taking 4 different antidepressants as I do not want all the negative people to make me feel any worse than I already do! I believe that the mind is more powerful than anything. I bought the movie "What the bleep do we know" it talks about how we are affected by mood and how other people's negative attitudes towards other's can make profound changes in our bodies! Just a though I have always said I am going to live to be 100yrs and I am 41yrs today, my life is just starting, I don't want to die, yet for the first time I am truely afraid more than when I had Cancer! Don't let anyone have the power to end your life be as posative as you can, I even go to the movies by myself I like hanging out with myself, you have the ability to overcome and be happy, remember that you can't drive a car looking at the rear view mirror only, you must look at what's in front of you to be able to go forward, Take care write me any time
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Comment by Sherry Taylor on February 11, 2010 at 6:02pm -
How are you doing, Susan?
You are 5 years younger than me and I intend to live at least as long as my dad..93..so there is still lots ot do see the forum and Mr C's site re the Landmark Case. we are going to move past this DOP rediculousness.
sincerely, Sherry Taylor
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Comment by Sherry Taylor on February 10, 2010 at 7:59pm
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Dear Susan,
You and I and everyone else we can take with us, are going to get better no matter how long we have had this, OK?
The infra re mat(heating pad) helps with the chills. Check Ceragem, or Dr. Staninger.
Your cells leak? What makes cell walls strong? That's what we need to do.
I adored my dog..but don't think I can have another one..but I'm contemplating working in a pet store. She got "M" from me. Molly was filled to the brim with love.
We must consolidate treatments..I heard what works for Lymes can also work for "M".
The story of how that started is maddening. These things are man made and we need to undo this damage..it's the right thing to do.
German scientists (and others in the medical field)often had to treat naturally occuring anthrax and mold issues from grain ...and develped helbal things since they had nothing else..worth looking into..one is the echanacia/goldenseal combo.
Lets dredge up the ancient knowledge that got burried in favour of modern quick fixes and handle this.
Sincerely, Sherry
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Comment by Susan C. Sillars on February 8, 2010 at 7:16pm
- The hospital in Germany was no spa. The FDA isn't going to let hyperthermia in this country and other treatments they have in U.K. The FDA wants to make MONEY and they can't make money off from these kind of treatments - they need drugs to make money from the big companies. I know I used to work at Upjohns and the FDA wants big money under the table to approve a new drugs. That why so many of us are going out of this country to get treatments that aren't allowed here. Sherry you sound very young and don't know what makes this world go round - MONEY!
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Comment by Sherry Taylor on February 8, 2010 at 5:26pm
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Dear Susan,
Wow, don't say your time is limited..please be a poster child for coming back. Can you get that treatment in North America? Germany has been into health spas for years..along with some other European countries. take care and keep us posted Sherry
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